Brain Injury: Where to go for help

Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Family Help Line – 1-800-444-6443
Family Help Line provides information on traumatic brain injury for survivors, families of survivors, and caregivers. There are a variety of brochures and videotapes available with information about prevention, returning home, family issues, caregiving, and other topics.

Head Injury Hotline
212 Pioneer Building
Seattle, WA 98104
Provides information on living with brain injury, including consultations and referrals to health care, legal professionals, and support groups. Established by the Phoenix Project, a TBI information clearinghouse. Web site contains hotline information.

American Stroke Association
7272 Greenville Avenue
Dallas, TX 75231

National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112-3747

American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, IL 60018

Community Resources

• Case managers or social workers at your local hospital.
• Human resources department where your loved one worked.
• State and national brain injury organizations.
• Local library.
• Local support groups.
• Your church.
• Family Caregiver Alliance (local and national).
• The Department of Rehabilitation Services in your state.
• United Way.

Injured brain

National Brain Tumor Society
National Brain Tumor Society

National Brain Tumor Society brings together the best in brain tumor research and supportive patient services. We offer hope to patients, families, and caregivers during every stage of the treatment journey. We invest wisely and strategically in innovative research that will lead to advances and ultimately to a cure.

East Coast Office
124 Watertown Street, Suite 2D
Watertown, MA 02472
Phone: 617 924 9997
Fax: 617 924 9998

West Coast Office
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Phone: 415 834 9970
Fax: 415 834 9980

Patient Services
800 934 2873

800 770 8287

The Family Caregiver Alliance
180 Montgomery St, Suite 1100
San Francisco, CA 94104
Assists families of persons with chronic or progressive brain disorders. Distributes information on caregiving and care of people with cognitive impairments. Web site contains fact sheets, articles, and on-line support via e-mail. Sections on diagnoses and fact sheets are especially helpful.

Traumatic Brain Injury Booklet CoverBrain Injury: A guide for family and friends

Table of Contents

What is a Brain Injury?
How Bad Is It?
How the Brain Functions
Common Problems During Early Recovery
The Intensive Care Unit (ICU)
Understanding Coma
How Does an Injured Brain Heal?
How You Can Help With Recovery
• Where Will the Journey Go From Here?
How Will I Ever Get Through This?
Where to Go for Help
• Books for Families Coping With Brain Injury


  1. Belinda Bush says

    I think the doctors and nurses give me and my family the doom and gloom on my brother. They stop feed him 4 7 days. And keep telling us he’s going to die. I disagree. I need help. Before they kill him.. help please sos. He in a coma 45 days. Help please. What should we do..

  2. Shellie Rutolo says

    I miss me after surviving a 5 day coma followed by 7 weeks of life support

  3. Vivian Garcia says

    I don’t know what to do. My son 51 years old had two strokes 7 months ago. He still is at the Hospital. Cannot talk his legs are contracted. We don’t know if he recognizes. He open his eyes move his head and arms and hands. The Dr wants to send him to a long term care, because he doesn’t respond. Because a big bed sore stage 4 he wasn’t able to have therapy. He got the bed sore at the first Hospital he was treated. Then he has been transfer to Hospitals to take care his bed sore that still he has. I don’t want my son live in that terrible condition. I want therapy for him. What can I Do?

  4. I need help right this second. This minute. I need to rail, cry, whatever. Right now. To who? Where is a hotline? My drug addicted child died and was revived. Her waste of space husband stands around beating his chest as a victim, same husband that crushed the zanax and took time to clean the residue from her nose, take her remaining meds from the bottles, step over her body to do these things THEN CALL 911…. Had he called lie ge said, she would not be laying in the medical ADA bedroom in MY HOME EATING her clothing, screaming, resisting diaper changes,. I am old, worn out, she was an addict under cover, harming her daughters, no one told anyone. He, an addict, still yet today. We got guardianship so we can watch her in this state while that bastard beats his victim chest and tries to spin lies and community drama. I am close to the point of revelation, he as a man and father. He refuses to get the children counseling saying “they mother is they counsel” and that will never happen. I am close. I need help. The 40 hour caregiver, akways has a problem, car issue, money issue, weather issue, pet issue…… I am so exhausted. Meanwhile I serve a buffet of tshirt S and bed linens, no longer able to get her out if bed because the wheel chair Medicaid provided is so substandard, her 5’7″ 135lb frame us in unrelenting pain in it. I am so close. Se list both breasts to cancer the summer before, the victim looking at her, as he walked out on her, saying “eff you and eff your cancer”. What a prince. I am SO CLOSE! Where are the helpers now? Hotline?

  5. I need to wake up from this fake reality.

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